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CCHC releases “Newborn Rights” notification to assist parents of new babies during hospitalization

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CCHC MEDIA RELEASE
Thursday, January 29, 2009
For Immediate Release

CCHC releases “Newborn Rights” notification to
assist parents of new babies during hospitalization

 

Document will help parents protect their baby’s privacy rights related to newborn
genetic testing, and state government storage of and research on newborn DNA


Minneapolis/Saint Paul – To give parents a tangible tool to protect the privacy and civil rights of their newborn babies, Citizens’ Council on Health Care has released a “Newborn Rights” notification document for use during hospitalization.

Citizens’ Council on Health Care (CCHC) also released the following statement from CCHC’s president, Twila Brase:

“Many parents have told us stories of the difficulties they’ve had trying to protect their newborn babies while at the hospital. Often the hospital staff knows nothing about the options parents have under the Minnesota newborn genetic testing law. Most don’t even know about the Minnesota genetic privacy law and its written consent requirements. Some mothers and fathers have awakened to the sound of their baby crying, only to learn that the baby’s blood had already been taken without their consent.

“To help parents protect their children, Citizens’ Council on Health Care is today releasing a notification form for parents to use in the hospital after the delivery of their baby. This simple form can be copied and posted on the door, taped to the bassinet, or placed wherever the parents think best. It can be handed to staff and used by the parents to notify the lab technicians, nurses, and doctors that they want to be contacted before anyone takes blood from their baby’s heel.

“For six years, CCHC has been calling on the Minnesota Department of Health to fully inform parents of their right to protect their newborn’s genetic privacy and DNA property rights. The Department has steadfastly refused. They have also failed to follow the required informed written consent requirements of Minnesota’s genetic privacy law. Last year, they sought to exempt themselves from the law, and when they were unsuccessful, they continued to violate it. To this day, there is no consent form, and the warehousing of baby DNA continues unabated.

“Today, more than 815,000 children have their DNA warehoused in the Minnesota Department of Health and more than 1.5 million children have their genetic testing results in a health department database. Over 52,000 children have been the subjects of genetic research without their parent’s knowledge or consent.

“Until the state health department begins to respect the civil and statutory rights of babies and families, we will do all we can to help parents protect their children’s genetic privacy and DNA property rights before they are stolen by the Minnesota Department of Health.”

FMI:
Twila Brase, President
651-646-8935
info@cchconline.org

– CCHC –

 

Citizens’ Council on Health Care supports freedom for patients and doctors, medical
innovation, and the right to a confidential patient-doctor relationship.

PROPOSED: Socialized Medicine, Gov’t Surveillance & DNA Grab! Minnesota

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Governor Pawlenty Supports Illegal Actions of MN Health Commissioner

CCHC held a press conference on December 10, 2008 challenging Governor Pawlenty to require health commissioner, Dr. Sanne Magnan, M.D., to follow the state’s genetic privacy law. WCCO-TV, KSTP-TV, and FOX-9 News gave the press conference great coverage, yet the Governor did not respond.

Instead, on January 9th, the Commissioner of the Minnesota Department of Health proposed to try again to eliminate parent consent requirements in the genetic privacy law by giving the Department access to baby DNA for at least two years. CCHC’s president, Twila Brase, was quoted in the St. Paul Pioneer Press saying, “This is the genetic profile of every child and the bloodline of every family…What they’re trying to say is, ‘For two years, it’s ours.'”

Last week, Twila Brase, president of CCHC, met TWICE with staff at the Governor’s Office. She met with the governor’s Director of Legislative and Cabinet Affairs, and his senior health care policy advisor. She made it clear that the Governor would have to publicly state that he is requiring the MN Department of Health to follow the law or we would feel free to assert three things as of January 21, 2009 (see below). No such proclamation has been made.

Thus, we regret to say, Governor Tim Pawlenty supports the following:

  • Violation of state law by the Minnesota Department of Health.
  • Government ownership and warehousing of newborn baby DNA.
  • Forcing newborn citizens and their families to become involuntary subjects of government genetic research.

To Contact Governor Pawlenty: 651-296-3391; 800-657-3717; tim.pawlenty@state.mn.us (voice mail is best)


Time to Twitter – Get CCHC Tweets!

CCHC has set up two sites on Twitter.

One is focused on genetic privacy and DNA ownership rights; the other is focused on the advance of socialized medicine. Within a hour of creating the NoSocializedMed twitter site, it had a follower…before CCHC even announced the site. Expect tweets straight from the halls of the legislature.

For those who do not know, “tweets” can only be 140 characters long. In other words, VERY SHORT!

U.S. House Republicans used Twitter to put pressure on Democrats during their energy sit-in during the 2008 August recess.

To see CCHC tweets – not more than two a day from each site – join Twitter and sign up to FOLLOW CCHC’s tweets. You can either come daily to the Twitter site to view the tweets…or be directly alerted whenever a new tweet is issued.

CCHC Twitter Sites:

http://twitter.com/itsmydna
http://twitter.com/noSocializedMed


Support CCHC’s Freedom-Focused Efforts Today

Your financial contributions will help CCHC’s efforts! Please donate $10 or $25 or $100 online today

Donations are tax-deductible!

CCHC has been approved as a 501(c)3 non-profit educational organization by the IRS.

Congress Passes S. 1858 creating DNA Warehouse for all US Citizens

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To contact President Bush:
Comments:   202-456-1111
Switchboard:   202-456-1414
FAX:  202-456-2461
EMAIL: comments@whitehouse.gov
The president has 10 legislative days to sign the bill or veto it.

 

 

MEDIA RELEASE

 

 

National “DNA Warehouse” bill passes; American citizens to become unwilling subjects of genetic researchCCHC calls on President Bush to Veto the Bill

 

 



Minneapolis/Saint Paul
– Yesterday, in a voice vote, the U.S. House of Representatives passed a bill to authorize the creation of a national DNA warehouse and broad-scale genetic research on the American public.

 

S.1858, passed by the U.S. Senate last December, has been sent to the President for signing.Twila Brase, president of CCHC, makes the following statement:”We are asking President Bush to veto this unethical, immoral, and unconstitutional bill.

 

Congress has voted to strip citizens of genetic privacy rights and DNA property rights. The bill also violates research ethics and the Nuremberg Code.”Soon, under this bill, the DNA of all citizens will be housed in government genomic biobanks and considered government property for government research.

 

The DNA taken at birth from every citizen is essentially owned by the government, and every citizen becomes a potential subject of government-sponsored genetic research.

 

“The public is clueless. S. 1858 imposes a federal agenda of DNA databanking and population-wide genetic research.  It does not require consent and there are no requirements to fully inform parents about the warehousing of their child’s DNA for the purpose of genetic research. Already, in Minnesota, the state health department reports that 42,210 children of the 780,000 whose DNA is housed in the Minnesota “DNA warehouse” have been subjected to genetic research without their parent’s knowledge or consent.

 

“President Bush should not sign this bill.”

Twila Brase
is president of Citizens’ Council on Health Care. She can be reached at 651-646-8935.

 

 

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Citizens’ Council on Health Care supports freedom for patients and doctors, medical
innovation, and the right to a confidential patient-doctor relationship.

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