Home

Will Public Health “Tyranny” Rise in 2009?

1 Comment

Will Public Health “Tyranny” Rise in 2009?
Next year promises to challenge the health freedoms of all Americans.

As we move together toward January 1 and the challenges ahead, I want to take this opportunity to thank you for your ongoing support of Citizens’ Council on Health Care.

Together we have faced legislative giants and toppled them (eg. Minnesota Health Insurance Exchange…Baby DNA Warehousing). Your signature has graced petitions and emails and letters. Your calls have rung in the ears of the Governor, the President, Congress and/or the Minnesota legislature. It’s been a blessing to be a part of it all.

CCHC’s string of successes across the years tells the tale of your faithful and active support of CCHC’s efforts.

I’d like to say we won, once and for all. But I can’t. In 2009, we expect state and federal public health agencies to reach for more intrusive controls on patient care and individual lives. Here are a few pending examples:

  • Health care rationing will be pushed under the guise of “value,” “quality,” “equity,” and “evidence-based medicine” – as defined by corporate and government officials working together. (My paper published by ALEC refuting EMB)
  • As a sign of things to come, the New York Commissioner of Health is supporting an 18% “fat tax” on soda pop.
  • The Minnesota Department of Health is expected to try again to eliminate our consent rights for government warehousing of newborn blood and baby DNA. If you haven’t already, please sign the CCHC petition asking Governor Pawlenty to dismantle the Baby DNA warehouse.
  • Senator Ted Kennedy plans to establish Hillary’s national health data system to put all the private details in your medical records online and electronically accessible to public health officials. (“Wired for Health Care Quality Act”)
  • Mr. Kennedy will also attempt to create a new national entity appointed to use your private data to grade your doctors “performance,” likely in concert with the U.S. Department of Health and Human Services.
  • The Minnesota Department of Health appears ready to support Minnesota hospitals and others as they push for corporate ownership of the tissue, blood and DNA you leave behind in clinics, and laboratories and hospitals.
These plans, however, are just that. Plans.

Although they have some heavy duty backers, these plans are no reason to give up. As a wiser person than me has said, “All it takes for evil to triumph is for good people to do nothing.” It thrills me to know that you are one of the good people that acts. It remains a grand and noble challenge to protect the freedoms we were blessed to receive by birth.

Eternal vigilance is key. In 2009, CCHC will work to educate you on the issues so your vigilance is spot-on and timely.

I am reminded every day of how you are the backbone, the breastbone, the legs, the arms and often the ears and eyes of CCHC. We prize your active engagement with our efforts and your active support for the great and exhilarating cause of freedom. With your help we will be ready and able to meet the challenges of 2009. 

I know that these are difficult days financially.

As you consider the possibility of year-end giving, we would be grateful to be on your list. If you’ve been planning to give and haven’t yet…please Donate Now

Faithful friends are precious indeed. Thank you for all you do to support CCHC.

I look forward to working with you in 2009.

Yours in freedom,

Twila

 


Twila Brase, RN, PHN
President, CCHC
651-646-8935 

Citizens’ Council on Health Care supports freedom for patients and doctors, medical
innovation, and the right to a confidential patient-doctor relationship.

Citizens’ Council on Health Care
1954 University Ave. W., Ste. 8
St. Paul, MN 55104

PLEASE ACT – MN government wants to own your DNA!

Leave a comment

ACT NOW !                                            

TAKE OUR DNA SURVEY

UNDER ATTACK:  Your Parent, Patient, Privacy & DNA Property Rights!

While the MN Genetic Privacy law today requires informed written consent before government or others can collect, store, use or share YOUR genetic information….state government bureaucrats and special interests in a state genetic committee want to eliminate the consent requirement next year!


The Threat                

NEWBORN DNA: The MN Genetic Information Working Group has met for a year. During these meetings, the issue of newborn genetic testing…and storage and use of newborn DNA-filled blood spots…has become very contentious. (see quotes below)

BIG GOVERNMENT: Working group members from the Minnesota Department of Health (MDH) want government control and ownership of citizen DNA for “public health” purposes. Their recommendation seeks to undo the informed written consent requirements of the 2006 genetic privacy law (MN Statutes 13.386).

• INVOLUNTARY RESEARCH: The lawyer representing Mayo Clinic in the working group wants all blood, tissue and body parts taken in the course of your medical care to be available without your consent for medical and genetic research by your clinic, hospital and laboratory.

OPPOSED TO GOVERNOR’S VETO: Mayo’s lawyer also stated during one of the meetings that Governor Pawlenty’s decision to veto the 2008 DNA warehouse bill should not have happened (Notice: Mayo has a contract with MDH to do genetic testing of all babies).


Your help is needed now!

The 2009 legislature will soon be asked to decide whether to protect or eliminate your consent rights, privacy rights, patient rights and DNA property rights.

A report from the MN Genetic Information Working Group will go to the 2009 legislature in December.

Twila Brase, CCHC’s president and an appointed member of the working group, has pressed for retaining informed written parent and patient consent requirements. She has said that government and private institutions must be required to obtain informed written consent for almost all collection, storage, use and dissemination of biological specimens (blood, tissue, fluids, organs, hair, etc). She has repeatedly told the working group:

  • Individuals need the right to protect themselves from having their genetic data used against them and their families.
  • No person should be forced to be an involuntary subject of medical and genetic research.
  • Genetic experts are already warning that there can be no guarantee of anonymity in research because of the proliferation of databases.
  • Even if DNA and genetic testing data could be anonymized, individuals should not be forced to participate in research they may find objectionable.

Today, the Mayo attorney told members of the working group that if they accept CCHC’s recommendations regarding research, Minnesota would become an “outlier.” Twila Brase disagreed, saying Minnesota would instead become a leader.

Help us protect your parent, patient, privacy and DNA property rights!

If you haven’t already done so…please take CCHC’s very brief DNA OWNERSHIP SURVEY today!

Please ask everyone you know to take the survey as well!

 

STATEMENTS HEARD AT TODAY’S MEETING OF THE   MN GENETIC INFORMATION WORKING GROUP:

“People have to be very careful in weighing the risk of discarding  specimens…If you limit the ability to test these spots or keep these spots, you’ll limit the ability to test for lethal conditions in the future.”

(Ruth Lynfield, MDH Epidemiologist, arguing for continued government retention of newborn blood taken from all babies at birth)

“Yes, that’s rightThat’s how it’s historically been done.”

(Lynfield, MDH, in response to a member’s question about whether newborn blood spots now retained by the state health department have already been used for research to develop additional newborn screening tests)

“Yes, perfectly healthy children’s blood spots were used.” (David Orren, MDH attorney, in response to a question about the Mayo Clinic’s research project on Wilson’s Disease using government-retained newborn blood spots – without parent consent or knowledge)

“Having a population-based [blood spot] repository is incredibly important.”

(Lynfield, MDH)

“Public health is such a broad purpose.”

(Orren, MDH, arguing against parent and patient written informed consent requirements for secondary uses of DNA, biological specimens, and genetic information retained by government)

CCHC ACTION ALERT info@cchconline.org

Frankenstein Science, Government and You….Revisited

1 Comment

I orignally wrote and posted this article in May of 2008.  At the time, people from across the country wrote to say that I was crazy and didn’t know what I was talking about.  Many people wrote (LOL!) at the end of their correspondence.

Guess who’s laughing now?  Marti

~~~~~~~~~~~~~~~~~~~~~~~~~~

While I would like to believe that only now, in this particular time period, has any government shown such disdain for its own common population, I know it isn’t true.  Historically, every government has come to the conclusion that only it should be preserved and that everyone outside of the government entity is expendible; eventually seen as unnecessary.  That time has come for Americans. 

With the exception of the obscenely wealthy, the corporately connected or those willing to sell their soul for a chance to avoid extermination, we have all been slated for mass erasure or a lifetime of poverty induced slavery. More

%d bloggers like this: