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TS Radio Network: Arlene Mullin Dialysis Advocacy # 20

September 24, 2019

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Join us live Tuesday September 24, 2019 at 7:00 pm CST!

5:00 pm PST…6:00 pm MST…7:00 pm CST…8:00 pm EST

Listen Live →HERE!←

Call in number 917-388-4520

Press #1 immediately when Blogtalk answers to speak to the host!

All shows will be archived and available 24/7 so you can listen at your convenience.

Hosted by Marti Oakley With Arlene Mullin

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Our Guest this Evening:

My name is Patti Martin

I am 5th child of six siblings. I am single college graduate that works in local government in North Carolina as a senior systems administrator (Windows Server environment).

I am caregiver to my Aunt Edna Mosley of Rockingham County, NC. who is single with no children. My aunt has two sisters living: Willie Mae (mom) and my aunt Margie, who helps take care of Edna.

My aunt graduated Barber Scotia College in Concord NC. She was also helpful in restoration of African American schools and an active member of the housing authority, providing housing for low income families. She was active in many other social clubs.

Our story :

My aunt Edna retired after 34 yrs of service with local city government. A year later my aunt was diagnosed with dementia and 3yrs later went on dialysis (chronic kidney disease). My aunt was always been a caregiver to someone in our family. I believe she deserved the same care back.

A few months ago my aunts arm started bleeding around her fistula. She entered into the hospital and ended up at Wake Forest Baptist Hospital who informed us that her fistula could never be used again. The family requested dialysis be continued while in hospital. That never happened. And, we were told she would need to get a catheter to continue dialysis. We then moved her hoping to get better care. My aunt Edna was dialysed using the same fistula that Wake Forest Baptist Hospital in Winston Salem NC said could not ever be used again..

She was discharged from the hospital with no recommendation to go back to her ongoing local dialysis center but rather, to go home to die; so far it has been 8 days.

Which leaves us looking for ways to continue her life by seeking help to find new location or way to continue dialysis that does not involve hospice .

Surrounding areas close by Aunt Edna locate dialysis center ..

Reidsville Eden,  Martinsville Va.     Danville Va less than 30 minutes travel .

Greensboro less then 40 min        Winston Salem 50mins.

TS Radio Network: Dialysis Advocates # 15

May 14, 2019

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Join us this evening May 14, 2019 at 7:00 pm CST!

5:00pm PST..6:00pm MST..7:00pm CST..8:00pm EST

→Listen Live →HERE←

Call in # 917-388-4520

Press 1 to speak to the host

Hosted by Arlene Mullin and Greg Coleman

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Whistleblower’s! Is brought to you in coordination with Marcel Reid and the Whistleblower’s Summit, taking place July 29-30-31, 2019 in Washington,D.C

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Join us this evening as we host Mr. Ron Hasson of the NAACP

During his years of employment he held a General Management Executive position with extensive experience in strategic planning, operations and human resource management. Ron is resourceful in solving problems and maximizing resources.

Mr. Hasson currently chairs the California-Hawaii State Conference Southwest Area. Director and in 2012 he became a member of the NAACP National board of Directors. He is serving his fifth term as President of the Branch, The focus of Mr. Hasson commitment continues to address issues concerning people of color in Region 1 and the Hollywood Industry.

Ron is a native of Tallahassee, Florida and a long-tune resident of California and has been instrumental in getting our NAACP Resolutions moving to make changes in the Dialysis Industry. Thank you for all dialysis patients.

Following Mr. Hasson we will hear from patients from a Davita clinic that have been told they are moving to another location.

This location is in a different county, which means that patients who cannot drive, will not be able to cross county lines for transportation.

We will extend an invitation to Davita and see why this is becoming another form of perhaps excluding patients.

This is legal, as some of these companies are closing and opening new centers in other areas.

 

TS Radio Network: Dialysis Advocates #14

May 7, 2019

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Join us this evening May 7, 2019 at 7:00 pm CST!

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TS Radio Network: Dialysis Advocates with Arlene Mullin # 6

February 19, 2019

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Join us February 19, 2019 at 7:00 pm CST!

https://dialysisadvocates.com/committed-advocacy/

5:00pm PST..6:00pm MST..7:00pm CST..8:00pm EST

→Listen Live →HERE←

Call in # 917-388-4520

Press 1 to speak to the host

Hosted by Arlene Mullin

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What is the consequence of the kidney shortage?

It is a catastrophe.  We conservatively estimate that each year 43,000 patients suffer on dialysis and die prematurely because of the shortage.  That’s equivalent to 85 fully loaded 747s crashing each year.  That’s 118 patients dying each day.  Since 1988 (when data collection began) almost 1 million patients have suffered and died prematurely because of the shortage.

Dr. Adwoa Akhu is a New York State–licensed clinical psychologist. She has broad experience in the areas of trauma, depression, anxiety, stress management, spirituality, relationships and intimate partner abuse and is Board Certified in African-Centered/Black psychology. Dr. Akhu is a former president of the New York Association of Black Psychologists and a former board member of the Association of Black Psychologists. She provides consultation, workshops and professional training on a wide variety of psychological issues. Dr. Akhu is the author of numerous self-help books including Cultivating Inner Peace: A Sustainable System for the Professional Black Women. For more information, visit Dr.Akhu.com

All patient cases have been documented and verified for accuracy.

Arlene Mullin — advocate, 20 years experience guiding patients and their families through all aspects of End Stage Renal Disease treatments.  Mullin has served patients in a majority of states, engaging both Medicare and state health authorities towards resolution of quality care issues at clinics.  Comprehensive knowledge of care issues on clinic level.  She was instrumental in getting the hearings on aging before the U.S. Senate in 2000 where she testified on patient care issue within the dialysis industry.

https://dialysisadvocates.com/committed-advocacy/

Dialysis Advocates is grateful for the opportunity to get this important message out for all Dialysis Patients.

We will be having a guest on the first part of every show. Then we will open the Microphones for the Town Hall. Patients and others will be able to discuss concerns and solutions. It will be a patient group, including families.

We also realize that many patients need to be supported and being heard is important for all patients in a safe venue.

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